Website and Content Developing Volunteer

We are looking for a proactive and technically skilled Website and Content Volunteer to help maintain and develop our online presence.

What difference will you make?

About Us

SEDSConnective is a pioneering, volunteer-led charity that supports individuals with both symptomatic hypermobility (such as Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders) and neurodivergent conditions (including Autism, ADHD, Dyspraxia, Tourette’s Syndrome, Dyslexia plus more).

Founded in 2018 by Jane Green MBE, who was driven by her own lived experiences, SEDSConnective began as a grassroots effort in Sussex, UK. Since then, we have grown into a global community, offering support, advocacy, and education to thousands of members worldwide.

Our mission is to

• Raise awareness of the link between hypermobility and neurodivergence.
• Improve outcomes for those affected.
• Provide support for individuals, families, carers, and professionals.
  
  

We are user led and are powered entirely by our passionate team of volunteers.

What are we looking for?

Experience with Wix is essential, including intermediate-level proficiency in JavaScript and SQL, with particular experience using the Wix JavaScript library (Velo). A passion for our vision is always a bonus.

Personal Qualities

• Creative Thinker Brings ideas for improving the user journey and engagement.
• Team Player Works collaboratively with others, respecting diverse perspectives.
• Commitment Passionate about SEDSConnective’s mission and dedicated to contributing to its impact.
  
  

Time Commitment

• Flexible, approximately 5–10 hours per week.
• Attend occasional online team or WhatsApp meetings.
  
  

What We Offer

• A chance to make a meaningful difference in a growing, inclusive charity.
• Flexible, fully remote volunteering.
• Supportive and collaborative team culture.
• Opportunities for personal development and skill-building.
• Reasonable expenses may be reimbursed where possible- there should not be any
  
  

What will you be doing?

This volunteer role ensures that the SEDSConnective website is accessible, engaging, and aligned with the charity’s mission and goals.

The Website Officer will work closely with the Chair and other team members to ensure the site remains functional, user-friendly, and continuously improved to serve our vibrant community. Experience with Wix is essential, including intermediate-level proficiency in JavaScript and SQL, with particular experience using the Wix JavaScript library (Velo). A passion for our vision is always a bonus.

We expect volunteers to be able to communicate ideally by WhatsApp and in a reliable fashion. The volunteer role is for a minimum of 9 months, and this enables you to be part of the team.

Key Responsibilities

• Website Maintenance
• Regularly update website content, ensuring information is accurate and current.
• Monitor website functionality, fixing any issues and maintaining a seamless user experience.
• Manage updates to plugins, themes and other website tools to ensure optimal performance.
• Content Development
• Work with the team to publish new blog posts, events and resources.
• Ensure the website aligns with branding and effectively communicates SEDSConnective’s vision and goals.
• Optimise content for accessibility, usability and SEO.
• Technical Oversight
• Oversee the website’s technical aspects, with a focus on JavaScript and SQL development within the Wix (Velo) environment.
• Ensure security and compliance with data protection regulations.
• Troubleshoot bugs or glitches, liaising with external support when necessary.
• Propose and implement improvements to boost functionality and engagement.
• Collaboration
• Work closely with trustees, volunteers and external partners to support campaigns, events and fundraising initiatives.
• Provide feedback and recommendations to the Board on potential website enhancements.